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Das Verschwinden des Josef
Mengele

by Olivier Guez

-244 days until until long birthday weekend. oh no
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Thursday

12

November

2015

The Thing With My Skin

Today, I enjoyed being alive. Yes, I realize how that sounds. 😉 I go around my delivery area with a smile on my face. I am so relaxed in my head, the crazy surrounding almost doesnt touch me. This REHA did wonders for me. I am growing as a person every time I am there. It was so fantastic. You get so much instant feedback, which I never get here. Its incredible. I just cannot wait to go back there. For now though, I have a reservoir full of happy memories and energy. It wont last long, I am sure, but for now, everything is good. 😀

The doctors there were quite unhappy with my treatment at home. As they were the last time already. I am usually on strong systemic medications. Biologics, immune suppressants, steroids and so on. After taking Azathiprion for two years, plus oral steroids for a year, I got to Israel with 60% of my body covered in atopic eczema. And I was doing fairly well mind you. The doctors there couldnt believe how I am given such strong meds for this period of time when it is clearly not helping. They were really mad actually. That was a keymoment for me and I reconsidered the last couple of years. I asked the dermatologist there if they are prescribing such meds to their patients in Israel as well and the instant reply was: never. Too strong, too many sideeffects. Hm. Even though they didnt want me to, because they were fearing a rebound, I quit the immune suppressants there.

After i got back from REHA, my skin was really good! Being there always does wonders for me. After a day at home, I felt my ekzema coming back. Really fast and pretty wide-spread. I called the clinic here for an appointement. The doctor there said: “He can see the eczema coming out and I should go back on immune suppressants right away before my complete body is covered again. Already at that point, an allergy test, like I had hoped for, was not possible anymore. I went out of the clinic and decided NOT to go back on immune suppressants. And imagine that: my skin is fairly good. I do have to put various cremes on my skin plus allergy pills, but for now, that is good enough for me. I enjoy being “unpoisened”. I feel strong and (almost) well.

Who knows what the future will bring. I enjoy every second where I can live an almost normal life. People who have never been “unwell”, have no idea how thankful they should be. And of course: yeah for REHA!

Big to everyone on day 12 / 30 on this wonderful journey, which is also called NaBloPoMo.



One Response to “The Thing With My Skin”


  1. Reply to this comment
    Lucy
    7:30 am on November 13th, 2015

    “Unpoisoned” sounds very hopeful! Go for it Connie!

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